On Sept. 7th families all across the world are observing Duchenne Awareness day. But if you were to ask any of us, we’d tell you it’s not just awareness we’re after; what we want is a cure. If you’ve never heard of Duchenne, also known as DMD,...
7 ways to help parents of special needs children When a crisis or abrupt change of life occurs, it can be difficult to express our needs. It’s no different for parents with special needs children. Depending on the needs of our child, we may get better at...
Last week we talked about how to be a friend when your friend has a special needs child. This week, I want to turn the table and encourage all of us who have friends who don’t share our same experiences. Friends or family who may not understand our child’s...
I sit listening to the giggles and imagination play from across the room. My granddaughter, Miss Emmy, and Danny Boy (my youngest son who has special needs) are playing. I can hear the exchange of ideas between the two of them. As I peek around my desk, I see Emmy...
Special needs parenting is messy. You can have it all together one moment, be on top of all the appointments, changes in medication, activity schedule, insurance issues and then… BAM! You discover you’re not on top of any of it. As a special needs mom,...
